About the AMHF
Meet Aidyn Mae, a 5 ½ year old little girl who suffers from FOXG1 syndrome, an incredibly rare brain disorder with less than 1,000 cases diagnosed globally. The FOXG1 gene is found in the brain and is responsible for creating a vital protein crucial for normal brain development and functionality. The deficiency of this protein has robbed Aidyn of the ability to walk, feed herself, or speak. Aidyn’s family has partnered with Believe in A Cure, a nonprofit founded by a fellow FOXG1 parent.
Our Story
On August 23, 2021, when Aidyn was a mere 6 months old, we received her diagnosis. Aidyn underwent numerous appointments and tests that led up to this day, and while we knew there was “something” wrong, we were left in utter disbelief when we were told there weren’t any available treatments and that she would not have an independent life.
The last five years have been difficult, and at times, unbearable: therapy appointments, insurance battles, sleep and movement disorders, G-tube feeding, Epilepsy. Through it all, we’re trying to do the best we can for our sweet girl. We have both been brought to tears and to our knees begging the Lord for mercy on innumerable occasions. He has been faithful in providing an outpouring of provision and love from our community so that we can continuously take steps toward maximizing the quality of Aidyn’s life.
-Darryl & Tessa Gottlieb
Our Committee
AMHF is a volunteer run organization. Thank you to all of our committee members who keep our mission alive!
Tarik & Melissa Bateh
Leslie Jones
Joe & Morgan Teichert
Erin Jones
Joseph & Aryn Lentz
Gary & Holly Walsh
Jenn Kjellman
Chip & Jen Skinner
Tori Walton
Rare Disease Resources
If you or your family are on a similar journey, or you are facing the pain and brokenness of life in any other way, here are some resources the Gottlieb family have found helpful in walking through this season:
